Before work this morning I posted a message on Facebook that included a link to a change.org petition urging the FDA to grant accelerated approval to a new drug for people suffering with ALS, like my mom. The message said this:
GM604 is the first bit of hope that my family has felt in more than two years. Please sign this.
A short time later I received the most beautiful and generous and unexpected phone call from my friend Mark who wanted to share with me a personal story about hope. His story included things that even I didn't know about him so I won't share it here, but after he finished and we ended the call he sent me a follow-up text message that said, "Miracles, including man-made, do happen."
For the rest of the day I couldn't shake those two words, hope and miracles. I'm not a religious person, not by a lot, so I have trouble putting faith in miracles, but not hope. Hope is something I can get behind. It's something I can create and hold onto and it's mine. Mark's phone call gave me yet another reason to cling to hope with both hands and that's something I'd like to remember about today. That and this quote by Barbara Kingsolver, one of my favorite authors.
"The very least you can do in your life is figure out what you hope for. And the most you can do is live inside that hope. Not admire it from a distance but live right in it, under its roof."